The Power of Friendship: Finding Strength in a Circle of Care
As Kurt’s primary caregiver during his journey with ALS, I wore many hats: advocate, nurse, cook, companion, and so much more. Each role...
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Scribes Of Strength:
Our ALS Stories
ALS - Our Stories - "Bring your authentic self!"
#IWrite-ALSChallenge
Create a new post based on the prompt: Write a letter to someone and tell them what you cannot tell them face to face - or wish that you had told them. The length is up to you.
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Emily Cerbone
Nov 132 min read
For the Love of Tavares
There wasn’t even a discussion about who would care for Tavares when he was diagnosed with ALS in 2018.
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Cristy Hardin
Nov 45 min read
Just Kurt: Finding Connection and Joy in the Face of ALS: A Caregiver's Perspective
Becoming Kurt’s full-time caregiver in the last stages of his battle with ALS was one of the most challenging yet meaningful experiences...
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Cristy Hardin
Nov 12 min read
Jesus Calms the Storm
By Bob Scannell I spent some reflection time in the chapel after Church today. During that time, I read a passage from a book which...
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Cristy Hardin
Nov 11 min read
🌟 Celebrating ALS Caregivers: Our Everyday Heroes 🌟
🌟 Celebrating ALS Caregivers: Our Everyday Heroes 🌟 November is a time to honor the unwavering strength, compassion, and dedication of...
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The Juan and Only
Oct 261 min read
4Walking Through Solitude
These walks can lead to growth or may lead to detours through difficult terrain. Regardless, solitude can be an opportunity to walk again...
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Emily Cerbone
Sep 192 min read
Traveling with ALS
Traveling with ALS can be both an adventure and a challenge. The requirements will vary depending on the stage of ALS and the use of...
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Emily Cerbone
Sep 161 min read
Change in life is inevitable
Change in life is inevitable - expected or unexpected, it is coming.
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Emily Cerbone
Sep 167 min read
Tavares Speer – One Man’s Unique Journey from ALS Acceptance to Social Media Advocacy
Tavares’ ALS symptoms began in 2014 with a slight twinge in his arm that he ignored for a long time. In 2017 the symptoms progressed.
119 views2 comments
Cristy Hardin
Jul 236 min read
Save Yourself! by Scott Craig
Post written by Scott Craig Nobody is coming to save you. You’ll have to save yourself. How do you process something like an ALS...
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Cristy Hardin
Jun 182 min read
Embracing the Strength of ALS Warriors and Caregivers
In the heart of our community, there's a remarkable strength that radiates from the individuals who face amyotrophic lateral sclerosis...
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Cristy Hardin
May 172 min read
What is a friend? A Caretaker's Perspective
What is a friend? A friend, by definition, is “a person whom one knows and with whom one has a bond of mutual affection.” The truest of...
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Emily Cerbone
May 113 min read
When Mother's Day Changed for Me
I used to celebrate Mother’s Day by showering my mother with cards and gifts and taking her out to her favorite restaurant for brunch.
39 views2 comments
Cristy Hardin
May 35 min read
What the "eff" is ALS?
What the “eff” is ALS? - By Scott Craig, pALS What the “eff” is ALS? Good question. Most people have never heard of ALS. I...
133 views2 comments
The Juan and Only
Mar 14 min read
So You Have ALS...Parts 3/4
So you have ALS What can you expect… (Part 3) Our journey continues… Now that we have addressed the initial assault and the paths before...
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About Us
ALS - Awarenes Learning Sharing
We are a collective of creative members of the ALS community, sharing and lending our voice to create a world without ALS.
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