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Scribes Of Strength: Our ALS Stories
ALS - Our Stories - "Bring your authentic self!"
Scribes of Strength AnthemJuan Escalera
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#IWrite-ALSChallenge
Create a new post based on the prompt: Write a letter to someone and tell them what you cannot tell them face to face - or wish that you had told them. The length is up to you.
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Inspired Thoughts
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getting back on the wagon
Soon, I will restart my Substack blog.
In addition to a simply poor attitude, I have been distracted configuring my new AI specialized eye gaze computer.
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ALS HACKS: FOR STARTERS
As I have Upper Motor Neuron Dominant ALS, I have only experienced loss of my voice and swallowing. Unfortunate, as I always say, because talking and eating are two things I love to do. While I can still talk, I’m hard to understand unless you’re looking and listening with intent. And I can eat most things but have to be careful. Still, I am thinking ahead, and preparing as well as I can for what my doc says is inevitable. Apparently, no matter how ALS starts, we all end up the same…with essentially everything that moves taken from us.
-My first recommendation is that upon discovering you have ALS, start learning and prepping. I think it will ease you into the discomfort of discovering you can’t use something when it occurs.
-If you haven’t banked your voice, especially if your voice is normal, bank that voice! Bank it now. Once…
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Welcome to our group ALS Life Hacks! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.
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ALS,
You are not a “dear.” You can’t read. You pass through this world like an idiot, knocking down everything in your path. I said, “Why me?” but when I meet others with ALS, I think “Why them?” I don’t blame God for your presence, and if you were in Satan’s army, I’m sure you would like me to blame Him. So joke’s on you. I ain’t blaming God. And know that a great ALS army is praying for a cure and to force you to go, kicking and screaming into oblivion, a disease of the past.
Barbara