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As I have Upper Motor Neuron Dominant ALS, I have only experienced loss of my voice and swallowing. Unfortunate, as I always say, because talking and eating are two things I love to do. While I can still talk, I’m hard to understand unless you’re looking and listening with intent. And I can eat most things but have to be careful. Still, I am thinking ahead, and preparing as well as I can for what my doc says is inevitable. Apparently, no matter how ALS starts, we all end up the same…with essentially everything that moves taken from us.

-My first recommendation is that upon discovering  you have ALS, start learning and prepping. I think it will ease you into the discomfort of discovering you can’t use something when it occurs.

-If you haven’t banked your voice, especially if your voice is normal, bank that voice! Bank it now. Once…

Welcome to our group ALS Life Hacks! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.

Streaming media devices have become an essential part of modern digital entertainment, reshaping the way people consume content and interact with multimedia experiences. These devices act as gateways that connect televisions and displays to the internet, enabling access to movies, shows, music, sports, news, and interactive applications. What began as simple set-top boxes with limited capabilities has transformed into a sophisticated ecosystem of compact streaming sticks, high-performance media hubs, and smart-TV integrations. Their rise has been driven by shifting consumer preferences away from cable television and physical media, toward more flexible, on-demand, and personalized content consumption. As a result, streaming media devices have solidified their place as core components of home entertainment systems around the world.

The evolution of streaming devices has been marked by significant technological advancements in a relatively short span of time. Early devices offered low-resolution playback and limited app support, but today’s streaming hardware supports 4K…

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I wrote this...B.R.T. 10*21*2025

"The Phoenix and the Snail"

The earth met my feet, a silent testimony to my retreat. As I made my way through the soft peat. I knew that soon I would greet, those lovely ferns and cool creeks. I am ready for my soul to be complete, with every minute I get to meet, in the forest...

Each step unspools a thread of ache. Woven with hope, for healings sake. I feel the sigh through the cedars and rain, with every forward footfall that I take...

The tree's, recall my childhood claims. With vows of faith, their branches bow, and whisper of my yearning flame...

Let the stars be my compass, and the Thrush, be my guide. And in this green hush, I'll need not to hide...