Morning, Sept. 1
I’m sitting on the back patio on this beautiful first day of September, having my carton of breakfast, holding up the tube receptacle like a chalice. It strikes me as funny for some reason. We could never have imagined the things that would make us smile, the things that we would be grateful for, with ALS. I’m grateful for a feeding tube, and that I can still pour the formula into the tube myself. If it weren’t for this tube, I would be starving to death. This tube gives me more precious time with my family. Today I’ll hear them laugh and say “I love you.”
18 Views
I hear you! Now that my voice sounds like a goose learning to talk, I have begun to use it as a form of humor, and it's funny. We're laughing at something I would have never thought of as funny. I have yet to get the feeding tube, so I'm looking forward to seeing the fun in that.