No time to wait.
Patience was never a virtue of mine. From birth I was always in a hurry. I started my life prematurely, coming two months before term in precarious conditions in Ivory Coast, Africa. I was a quick one, always on the go. A racing horse impatient in the stall before a race. An activator, learning by doing, and eager to get started on any project. I carried this desire for action in my adult life, and it served me well personally and professionally. At the peak of my existence, life was about to teach me an important lesson.
When my first ALS symptom appeared, I blamed my fast pace. This sudden slurred speech was a sign for me to slow down. My primary care physician was quick to render his judgement: you’re young and healthy, nothing to worry about. To appease me, however, he referred me to a speech therapist…




As a doc, and one with ALS, I believe ALS tops the list of things you don't want to have. With other diseases, for which there is treatment and some hope, there are respites in the course of the disease; periods of no pain, remissions, surgeries with good outcomes, even if not permanent. And there are pain meds and oblivion in the end. There are cures. Effective treatments. Not so with ALS. There is nothing...and progression...and nothing. Thank you for your writings. You took the words right out of my mouth. God bless you and keep you.