Embracing the Strength of ALS Warriors and Caregivers
In the heart of our community, there's a remarkable strength that radiates from the individuals who face amyotrophic lateral sclerosis...
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Scribes Of Strength:
Our ALS Stories
ALS - Our Stories - "Bring your authentic self!"
#IWrite-ALSChallenge
Create a new post based on the prompt: Write a letter to someone and tell them what you cannot tell them face to face - or wish that you had told them. The length is up to you.
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Cristy Hardin
Nov 252 min read
The Power of Friendship: Finding Strength in a Circle of Care
As Kurt’s primary caregiver during his journey with ALS, I wore many hats: advocate, nurse, cook, companion, and so much more. Each role...
6 views0 comments
Emily Cerbone
Nov 132 min read
For the Love of Tavares
There wasn’t even a discussion about who would care for Tavares when he was diagnosed with ALS in 2018.
133 views0 comments
Cristy Hardin
Nov 45 min read
Just Kurt: Finding Connection and Joy in the Face of ALS: A Caregiver's Perspective
Becoming Kurt’s full-time caregiver in the last stages of his battle with ALS was one of the most challenging yet meaningful experiences...
13 views0 comments
Cristy Hardin
Nov 12 min read
Jesus Calms the Storm
By Bob Scannell I spent some reflection time in the chapel after Church today. During that time, I read a passage from a book which...
5 views0 comments
Cristy Hardin
Nov 11 min read
🌟 Celebrating ALS Caregivers: Our Everyday Heroes 🌟
🌟 Celebrating ALS Caregivers: Our Everyday Heroes 🌟 November is a time to honor the unwavering strength, compassion, and dedication of...
12 views0 comments
The Juan and Only
Oct 282 min read
The Tightrope
A piece I recently wrote referenced tightrope walking, and this got me thinking of a relationship. This relationship is the one between...
110 views0 comments
The Juan and Only
Oct 261 min read
4Walking Through Solitude
These walks can lead to growth or may lead to detours through difficult terrain. Regardless, solitude can be an opportunity to walk again...
19 views0 comments
Elin Adcock
Sep 273 min read
You Are Enough
Of all the things that still eat at me, it’s the wondering about what he thought of me at the end that eats at me the most. I used to be...
10 views0 comments
Emily Cerbone
Sep 192 min read
Traveling with ALS
Traveling with ALS can be both an adventure and a challenge. The requirements will vary depending on the stage of ALS and the use of...
32 views0 comments
Emily Cerbone
Sep 161 min read
Change in life is inevitable
Change in life is inevitable - expected or unexpected, it is coming.
22 views0 comments
Emily Cerbone
Sep 167 min read
Tavares Speer – One Man’s Unique Journey from ALS Acceptance to Social Media Advocacy
Tavares’ ALS symptoms began in 2014 with a slight twinge in his arm that he ignored for a long time. In 2017 the symptoms progressed.
120 views2 comments
The Juan and Only
Sep 131 min read
ALS The Price You Pay
http://alstexasdad.com/2022/05/07/als-the-price-you-pay/ "... Over a 10-year period (2001-2010), all expenses related to the cost of care...
5 views0 comments
Elizabeth Fassler
Sep 81 min read
Ebb and Flow
“Slow down, what’s the rush?” my husband would say to me as we hiked a trail, walked across a parking lot, or to any destination that we...
13 views0 comments
Elin Adcock
Sep 71 min read
Bloom
I pass this century plant on my daily walk. I have watched it bloom, then die these past 3 years. Now spawning pups; Iife continues.
14 views0 comments
The Juan and Only
Aug 41 min read
Terminal Destinations
http://juanderwithus.family.blog/2024/08/03/terminal-destinations/ "... With every encounter, every person you meet leaves a piece of...
10 views1 comment
The Juan and Only
Jul 311 min read
My Friend Fred
https://juanderwithus.family.blog/2024/07/31/my-friend-fred/ ... "Hi, my name is John, and I'd like to introduce you to my friend Fred....
5 views0 comments
jenlandis72
Jul 261 min read
Silence
The air is heavy Thick with silence And garbled utterings Can you please repeat? I feel numb Contemplating my imminent loss Tears swell...
6 views0 comments
Elin Adcock
Jul 232 min read
Why I Almost Never Use The Care Emoji Anymore
I spend a fair amount of time on social media - usually on Facebook. I realize that puts me in the category of “older” users, but I guess...
20 views0 comments
Cristy Hardin
Jul 233 min read
Turning to God when it's time to get your affairs in order (by Randy Gregory)
The greatest joy of facing ALS has been solidifying my relationship with God and relying on Him completely. When your world is turned...
6 views0 comments
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ALS - Awarenes Learning Sharing
We are a collective of creative members of the ALS community, sharing and lending our voice to create a world without ALS.
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