Embracing the Strength of ALS Warriors and Caregivers
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In the heart of our community, there's a remarkable strength that radiates from the individuals who face amyotrophic lateral sclerosis...
Cristy Hardin
2 days ago5 min read
Just Kurt: Finding Connection and Joy in the Face of ALS: A Caregiver's Perspective
Becoming Kurt’s full-time caregiver in the last stages of his battle with ALS was one of the most challenging yet meaningful experiences...
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Cristy Hardin
5 days ago2 min read
Jesus Calms the Storm
By Bob Scannell I spent some reflection time in the chapel after Church today. During that time, I read a passage from a book which...
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Cristy Hardin
6 days ago1 min read
🌟 Celebrating ALS Caregivers: Our Everyday Heroes 🌟
🌟 Celebrating ALS Caregivers: Our Everyday Heroes 🌟 November is a time to honor the unwavering strength, compassion, and dedication of...
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The Juan and Only
Oct 282 min read
The Tightrope
A piece I recently wrote referenced tightrope walking, and this got me thinking of a relationship. This relationship is the one between...
103 views0 comments
The Juan and Only
Oct 261 min read
4Walking Through Solitude
These walks can lead to growth or may lead to detours through difficult terrain. Regardless, solitude can be an opportunity to walk again...
15 views0 comments
Elin Adcock
Sep 273 min read
You Are Enough
Of all the things that still eat at me, it’s the wondering about what he thought of me at the end that eats at me the most. I used to be...
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Emily Cerbone
Sep 192 min read
Traveling with ALS
Traveling with ALS can be both an adventure and a challenge. The requirements will vary depending on the stage of ALS and the use of...
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Emily Cerbone
Sep 161 min read
Change in life is inevitable
Change in life is inevitable - expected or unexpected, it is coming.
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Emily Cerbone
Sep 167 min read
Tavares Speer – One man’s unique journey from ALS acceptance to social media advocacy
Tavares’ ALS symptoms began in 2014 with a slight twinge in his arm that he ignored for a long time. In 2017 the symptoms progressed.
92 views2 comments
The Juan and Only
Sep 131 min read
ALS The Price You Pay
http://alstexasdad.com/2022/05/07/als-the-price-you-pay/ "... Over a 10-year period (2001-2010), all expenses related to the cost of care...
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Elizabeth Fassler
Sep 81 min read
Ebb and Flow
“Slow down, what’s the rush?” my husband would say to me as we hiked a trail, walked across a parking lot, or to any destination that we...
13 views0 comments
Elin Adcock
Sep 71 min read
Bloom
I pass this century plant on my daily walk. I have watched it bloom, then die these past 3 years. Now spawning pups; Iife continues.
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The Juan and Only
Aug 41 min read
Terminal Destinations
http://juanderwithus.family.blog/2024/08/03/terminal-destinations/ "... With every encounter, every person you meet leaves a piece of...
10 views1 comment
The Juan and Only
Jul 311 min read
My Friend Fred
https://juanderwithus.family.blog/2024/07/31/my-friend-fred/ ... "Hi, my name is John, and I'd like to introduce you to my friend Fred....
5 views0 comments
jenlandis72
Jul 261 min read
Silence
The air is heavy Thick with silence And garbled utterings Can you please repeat? I feel numb Contemplating my imminent loss Tears swell...
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Elin Adcock
Jul 232 min read
Why I Almost Never Use The Care Emoji Anymore
I spend a fair amount of time on social media - usually on Facebook. I realize that puts me in the category of “older” users, but I guess...
19 views0 comments
Cristy Hardin
Jul 233 min read
Turning to God when it's time to get your affairs in order (by Randy Gregory)
The greatest joy of facing ALS has been solidifying my relationship with God and relying on Him completely. When your world is turned...
4 views0 comments
Cristy Hardin
Jul 236 min read
Save Yourself! by Scott Craig
Post written by Scott Craig Nobody is coming to save you. You’ll have to save yourself. How do you process something like an ALS...
24 views0 comments