Where Did You Go? ALS & FTD
(ARTWORK BY CLINT D. ANDERSON) "...ALS is often referred to as a disease where you lose someone gradually, but they are still present....
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Scribes Of Strength:
Our ALS Stories
ALS - Our Stories - "Bring your authentic self!"
#IWrite-ALSChallenge
Create a new post based on the prompt: Write a letter to someone and tell them what you cannot tell them face to face - or wish that you had told them. The length is up to you.
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The Juan and Only
Mar 252 min read
ALS & Technology
ALS, terminal, fatal, incurable, hopeless, and devastating. All of these words are synonymous with ALS. There is one more that has a...
67 views1 comment
The Juan and Only
Mar 136 min read
So You Have ALS... Parts: 5, 6, 7
So you have ALS What can you expect… (Part 5) Now that we sat for a spell, caught our breath and digested the mountain of information...
16 views0 comments
Cristy Hardin
Mar 91 min read
Masks
Masks By Kurt Ewen (shared on his behalf) Diagnosed with ALS 2/24/21 Passed from ALS 10/21/23 As a child I learned to wear masks. Actual...
20 views0 comments
Emily Cerbone
Mar 63 min read
Missing My Dad
Many people mistakenly think that because I lost my father when I was in my forties, and he was already older – in his early seventies
68 views4 comments
The Juan and Only
Mar 14 min read
So You Have ALS...Parts 3/4
So you have ALS What can you expect… (Part 3) Our journey continues… Now that we have addressed the initial assault and the paths before...
34 views0 comments
Emily Cerbone
Feb 272 min read
Writer Spotlight: Nate Methot
Earlier this month, The Write Stuff team welcomed Nate Methot who joined us for a chat about his writing experience, including how it...
65 views0 comments
Elizabeth Fassler
Feb 241 min read
Red, red, robin
“When the red, red, robin comes bob, bob, bobbin' along, along There'll be no more sobbin', when he starts throbbin' his old sweet song...
47 views4 comments
Elizabeth Fassler
Feb 221 min read
Singing the hypercapnia blues
CO2 has got me blue It isn't an emotional flood; but too much of that chemical in my blood Feeling hungry, a meal sounds great, it was...
37 views0 comments
Cristy Hardin
Feb 211 min read
Had I known
Four months ago. It seems like such a strange thing to imagine that 122 days ago my best friend took his last breath. Some days it still...
43 views0 comments
The Juan and Only
Feb 202 min read
So, you have ALS. What can you expect…
(Part 1&2 of 7) Initially: shock, dismay, numbness, fear, confusion, anger and a slew of many more emotions. You and your family will...
64 views0 comments
Elin Adcock
Feb 85 min read
Built with Many Hands
My life has been filled with projects. There’s just nothing more satisfying to be as a project completed. I learned to crochet at nine,...
54 views1 comment
The Juan and Only
Feb 72 min read
I Don't Want To!
pALS and selfish behavior, yes it happens. As difficult as it is to say, let alone admit it. There are times when we behave like petulant...
48 views1 comment
Cristy Hardin
Feb 21 min read
The Timer has Started; Reflections from a primary caregiver
Kurt was diagnosed with ALS February 24, 2021. His symptom onset seemed slow at first, but kicked into high gear in the latter part of...
553 views2 comments
Cristy Hardin
Jan 251 min read
The Diagnosis
Kurt was diagnosed with ALS in 2021 after a year of symptoms that were initially treated as stress-related. On February, 24, 2021,...
330 views4 comments
The Juan and Only
Jan 232 min read
Alone-ly
There are times when I feel alone, on this, my ALS journey, knowing that I am not. I’m sure many of my fellow ALS’ers feel this. However,...
182 views3 comments
The Juan and Only
Jan 162 min read
ALS In Wonderland Artwork by Clint Anderson
”I'm late, I'm late, for a very important date! No time to say "Hello, Good Bye" I'm late, I'm late, I'm late!” ~The White Rabbit The...
161 views3 comments
The Juan and Only
Jan 112 min read
Jack Of All...
Do you know someone who is a caregiver full time? Do you really understand their daily grind? Think of it this way... A family caregiver...
325 views0 comments
Elin Adcock
Dec 29, 20232 min read
The Question of Happiness
The question of happiness came up in a discussion on one of my support group pages. I am paraphrasing, but essentially, the writer asked...
104 views1 comment
The Juan and Only
Dec 27, 20232 min read
Caregivers’ Morning
If it has been an uninterrupted night of sleep, first thought is of thanks for the rest. The second thought is, “why? Are they ok?”...
159 views2 comments
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ALS - Awarenes Learning Sharing
We are a collective of creative members of the ALS community, sharing and lending our voice to create a world without ALS.
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