ALS, Grief and Friendship
By Juan Reyes
ALS, three letters spelling death
Living life while running out of time
The clock chimes, eternal rest
A joy stick in hand
Destinations to explore, have I been before
My mind takes me there
Memories of these flavors linger
Notes of bitter life, tastes like loss
Nourishment for body and soul
Eyes that care and give
Body that demands too much of you
Heart shatters when rest arrives
Condemned, my body the prison
The walls atrophy daily, crushing my soul
No reprieve, parole or pardon
By Cristy Hardin
Grief, acceptance, rejection,
Adjusting to new and old,
Tears reveal sadness.
Shifting sands beneath,
Drifting out to sea, memories,
Forever with us.
Speak, friend, though you’re gone,
Guide me to your heart's embrace,
Words echo softly.
Love in death persists,
Into forever it endures,
Hope, peace, togetherness.
By Emily
Family
At first we were three,
Then we became only two,
In the end, just one.
Dad
He was my father,
My comforter always there,
Until he wasn’t.
Linda
ALS linked us,
It started with a wheelchair,
It ended as friends.
Dragon Fly
When I drove to work,
You guided me, dragon fly,
Always by my side.
By Liz Fassler
M3 Corpus
Body caressing,
Standing, sitting, and between,
My point of view now.
Zoom
You are a picture,
Stories, connections, shared grief,
Now we are ALS friends.
Looking for the right emoji
So rigid, compact,
Saying so much, so quickly
Haiku loathing, me.
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