top of page

ALS Life Hacks

Public·3 members

ALS HACKS: FOR STARTERS

As I have Upper Motor Neuron Dominant ALS, I have only experienced loss of my voice and swallowing. Unfortunate, as I always say, because talking and eating are two things I love to do. While I can still talk, I’m hard to understand unless you’re looking and listening with intent. And I can eat most things but have to be careful. Still, I am thinking ahead, and preparing as well as I can for what my doc says is inevitable. Apparently, no matter how ALS starts, we all end up the same…with essentially everything that moves taken from us.

-My first recommendation is that upon discovering  you have ALS, start learning and prepping. I think it will ease you into the discomfort of discovering you can’t use something when it occurs.

-If you haven’t banked your voice, especially if your voice is normal, bank that voice! Bank it now. Once…

10 Views

Welcome to our group ALS Life Hacks! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.

11 Views

    Follow

    • Facebook

    ©2023 by Scribes of Strength Proudly created with Wix.com

    bottom of page