I’m sitting on the back patio on this beautiful first day of September, having my carton of breakfast, holding up the tube receptacle like a chalice. It strikes me as funny for some reason. We could never have imagined the things that would make us smile, the things that we would be grateful for, with ALS. I’m grateful for a feeding tube, and that I can still pour the formula into the tube myself. If it weren’t for this tube, I would be starving to death. This tube gives me more precious time with my family. Today I’ll hear them laugh and say “I love you.”
top of page
Scribes Of Strength: Our ALS Stories
ALS - Our Stories - "Bring your authentic self!"
Scribes of Strength AnthemJuan Escalera
00:00 / 03:18
#IWrite-ALSChallenge
Create a new post based on the prompt: Write a letter to someone and tell them what you cannot tell them face to face - or wish that you had told them. The length is up to you.
bottom of page
