As I sit here, on my powerchair
I watch the active and able carry on
Being unable to walk or stand
Steps are an obstacle to see friends
Family is my savior and caretaker
But being stuck watching and
Playing online games all day, everyday,
Gets old.
Somedays, even with anti-depressants on board,
My mind goes to how I will die
Despite the love of my wife and caretaker
Who wants me to live 20+ years, I often
Think that I will not make it to next Christmas
ALS has robbed me of hope, of life and of liberty
And this gets old.
The only one that will not get old is me
Due to this horrific disease, many of us will not
Get old.